I mentioned Danielle back in July when she was about to testify in front of the Joint Economic Committee in DC about the price gouging going on at Questcor, the manufacturer of Acthar Gel (ACTH) for infantile spasms (IS).
Today, she posted an open letter in response to Don Bailey, the President/CEO of Questor.
Please hop over there & show her your support. Just post a comment to say hi & let her know you're praying for her & her family.
She's currently going through a relapse of her son's IS - Trevor went 8 months seizure-free, after Danielle & her hubby fought to get his first 5 vials of the ACTH (at $25,000 a vial!!!). But they just found out last week that his seizures have returned. She's currently playing the waiting game AGAIN - for the vital drug from Questor, that's needed to stop Trevor's seizures.
No mother should have to go through this!
Hugs & Kisses Danielle! I can't stop thinking about & praying for your family! Love you girl!
Sharon
3 comments:
Thanks for posting this. It helps when even the non-IS world can understand our plight and help us fight Questcor.
And you are 100% correct, he should hand deliver it!
Jen
Wow Sharon! I'd love to say something eloquent...and moving...but I used up all my words for today! Sooooo.... ((((hugs)))
...danielle
I second that, Jen!
Should have hand delivered with a red ribbon and said "no charge".
Post a Comment