this is Trevor
he's currently visiting Detroit & is having a very busy week!
Sunday was his MRI, yesterday was his PET scan, 2day is GRID placement (he's in surgery as i type this), Wednesday & Thursday is data collecting time (with the GRIDS in place)
he's currently visiting Detroit & is having a very busy week!Sunday was his MRI, yesterday was his PET scan, 2day is GRID placement (he's in surgery as i type this), Wednesday & Thursday is data collecting time (with the GRIDS in place)
then on Friday...Trevy has brain surgery!
(subtotal hemispherectomy)
i honestly can't imagine having the words "brain surgery" in the same sentence as 1 of my kiddos' names...but this surgery is 2 slay the seizure monster (infantile spasms) that's had a hold of Trevor 4 almost 2 years...& i think his parents must b the bravest parents on Earth!!!
in Danielle's words...
(Trevy's Mama)
"Trevor is having...and has been having...hundreds of med resistant seizures daily. For the past year. A scenario which they believe surgical intervention could alter. Is it morbid that for the fleetest of moments I felt vindicated that they would notice? And that I was not alone in my disturbia? Which is not just limited to my flesh and blood...but extends to all the other families I've grown to love through this journey. I deeply love you! And I know the mountains of courage it takes to live moment by moment. From one seizure to the next. Which is why my heart was soaring and sorrowing all at once."
(subtotal hemispherectomy)
i honestly can't imagine having the words "brain surgery" in the same sentence as 1 of my kiddos' names...but this surgery is 2 slay the seizure monster (infantile spasms) that's had a hold of Trevor 4 almost 2 years...& i think his parents must b the bravest parents on Earth!!!
in Danielle's words...
(Trevy's Mama)
"Trevor is having...and has been having...hundreds of med resistant seizures daily. For the past year. A scenario which they believe surgical intervention could alter. Is it morbid that for the fleetest of moments I felt vindicated that they would notice? And that I was not alone in my disturbia? Which is not just limited to my flesh and blood...but extends to all the other families I've grown to love through this journey. I deeply love you! And I know the mountains of courage it takes to live moment by moment. From one seizure to the next. Which is why my heart was soaring and sorrowing all at once."
i've grown 2 ♥ Danielle dearly...she became a close bloggy friend, long ago - drawn 2 each other by that common thread - the love we have 4 our typical & special needs kiddos alike...she supported me every step of the way during my cancer schmancer stuff...always had my back & was an encouraging voice, routing me on
she's 1 tough cookie too - a superwoman advocate 4 Trevor & all kiddos effected by IS...a devoted Mama 2 not just Trevy, but also to 2 other adorable monkeys! ;0) she's witty & clever, kind & real, honest & humble...she's the kind of Mama i work hard 2 b!
i pray that God is holding the Foltz family extra close right now...that He's putting Danielle & Jonathan's hearts at peace as they go thru this week...that they know they're doing everything they can 2 help ensure Trevor has a long, bright future...that there r no regrets...that they find comfort in knowing God is with them always
will u also say a prayer 4 Trevy 2day?
& 2moro, & the next day, & especially on Friday?
she's 1 tough cookie too - a superwoman advocate 4 Trevor & all kiddos effected by IS...a devoted Mama 2 not just Trevy, but also to 2 other adorable monkeys! ;0) she's witty & clever, kind & real, honest & humble...she's the kind of Mama i work hard 2 b!
i pray that God is holding the Foltz family extra close right now...that He's putting Danielle & Jonathan's hearts at peace as they go thru this week...that they know they're doing everything they can 2 help ensure Trevor has a long, bright future...that there r no regrets...that they find comfort in knowing God is with them always
will u also say a prayer 4 Trevy 2day?
& 2moro, & the next day, & especially on Friday?
4 comments:
Oh sheesh...first the baggie filled with curls...now this! How am I ever supposed to wear make up again!?
xoxo
...danielle
That little guy has the most beautiful green eyes ever....are his eyes really that beautiful shade of green that my monitor displays???
Prayers!
Oh my goodness! Will definitely keep him in my thoughts.
Oh my - he looks like my Isaac with that head full of curls! I'll be thinking about him and his family for sure.
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